Casey who was born on 9th November 2011 is a beautiful baby boy who brings so much joy to his family and so many others who are fortunate enough to meet him. Casey isn’t like most other baby boys he is an extraordinary baby boy.

Unfortunately, during labour Casey was left without enough oxygen for an extended period of time, which has sadly left him with significant brain damage.  Multiple scans have shown that Casey only has the Stem of his brain left, and fluid has replaced where his brain once was.

As a result of this, Casey has been diagnosed with Hypoxic-Ischemic Encephalopaty (HIE), Severe Epilepsy, Cortical Visual Impairment (CVI0), Hypotonia- Failure to thrive-Microcephaly, West Syndrome, Cerebral Palsy and Spastic quadriplegia. It is a huge amount of illness for anyone to bare, let alone a small baby.

Despite these afflictions, Casey is such a charismatic baby who personifies what it is to love and to be loved. Each day, Casey deals with a multitude of painful spasms, epileptic seizures and extremely painful cramps, yet he has a smile and a chuckle that would brighten even the darkest rooms.

Even with his limiting illnesses, impairments and disabilities, Casey is developing in his own little way. Casey is able to respond to sound, touch and even light patterns. If you look at the disabilities that Casey has, he is a living miracle, but he will need constant care for the rest of his life.

Casey needs care 24 hours a day as a result of his disabilities he has been left with. It is taking superhuman efforts for his family to get through each day. At present Casey’s care is undertaken by his parents, sister and grandparents. The amount of care Casey requires is substantial and it takes a number of skilled and trained people to care for him. Unfortunately the only respite the family receive is from the charity Ty Hafan.

Just after Casey’s birth his dad Anthony began having epileptic seizures which caused him to black out. The family sought medical advice, and an MRI scan revealed a tumour on the front left hand side of his brain. Anthony decided to have surgery in May 2012 in the hope that this would remove the tumour and the disease from his body, however, during a recent MRI scan the family were told that the brain tumour had returned. As a result of this, Anthony and the family now have to brave a second operation, followed by 6 weeks of intensive Radiotherapy.

There is so much that can be done to improve the quality of Casey’s life. The family have set up Casey’s Cause. The fundraising facility will provide Casey and his family with the help and resources they so desperately need and deserve (including extremely expensive equipment that is not always available via the NHS, yet is essential to Casey’ future development).

Talk training have already raised £250 towards Casey’s Cause and will be holding different events to raise money in the coming months. We hope to reach our target of £650 to buy Casey a bubble tube.